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...The Gift A
Documentary by Louise Hogarth
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Fact: After years of decline, the number of syphilis cases among gay men in King County has recently risen to extremely high levels, according to the county's department of public health. The years of decline began in 1981, when AIDS scared gay men away from the orgiastic sex practices of the 1970s. By 1988, with AIDS devastating the gay community and safe sex or abstinence seemingly the only alternative to death, syphilis almost disappeared among gay men in this area. Eight years later, it had disappeared -- in 1996, there were zero syphilis cases among local gay men. Then in 1997, the year that powerful new AIDS drugs became widely available, the number of gay men with syphilis began to climb. If the upward trend continues, there could be as many as 120 new cases of syphilis among local gay men this year. In other words, thanks to many gay men going retro in their sexual behavior, the rates of syphilis among gay men in this area are now at levels not seen since the early 1980s--levels that are more than 100 times those found among the area's heterosexuals. Fact: It's not just syphilis that's making a comeback in the gay community. King County's director of STD control, Dr. Hunter Handsfield, says that chlamydia and gonorrhea are also at extremely high levels. Between 1997 and 2002, Handsfield estimates, the number of cases of gonorrhea among local gay men at least doubled, and possibly increased as much as fourfold. In the same period, the number of gay men appearing in the King County STD clinic with chlamydia more than tripled. Syphilis, gonorrhea, and chlamydia are all treatable, but their increased prevalence among gay men is alarming because the same behaviors that transmit syphilis, gonorrhea, and chlamydia also transmit HIV--for which, by the way, there is still no cure. "Things are trending in a bad direction," says Dr. Bob Wood, director of the HIV/AIDS program at Public Health--Seattle & King County, the county's public health department. "We know that people don't get these STDs without having unprotected sex." Fact: A study of nearly 1,000 Seattle gay men conducted at health clinics between August 1999 and May 2000 found that more than one-third of the HIV-positive men and nearly two-thirds of the HIV-negative men had recently had sex with guys whose HIV status they did not know. Not surprisingly, this study found that many of the guys who were not asking for their sex partners' HIV status were also not telling. Nearly half of the HIV-positive men in the study reported being inconsistent in telling their sex partners they were positive. The nightmare scenario would be if these don't-ask-don't-tell men were having lots of unprotected anal sex, which is one of the most efficient ways to transmit HIV. And that's exactly what the study found: More than 80 percent of all the gay men surveyed reported having had anal sex recently, and more than two-thirds of the men who were HIV-positive reported using condoms inconsistently; one-third of positive guys said they never used condoms at all. Fact: The department
of public health estimates there are about 42,500 gay men in King County,
and more than 2,500 of those men are living with HIV. Since the early
1990s, the county estimates, the rate of new HIV infections in gay men
has remained stable at about 400 a year. How did we get here?
Amnesia on the part of gay men and irresponsibility on the part of gay
men's health organizations. In the span of a few years, gay men seem
to have forgotten how bad AIDS was (and is--just ask the guys who have
it) while at the same time neglecting to realize that our present behavior
makes our future bleak. As gay activist Gabriel Rotello wrote in his
book, Sexual Ecology, which was published six years ago, just before
the new AIDS drugs became available: "Almost every researcher studying
the [AIDS] epidemic is convinced of one overarching fact: that if gay
men ever re-create the sexual conditions of the seventies, the same
kind of thing will happen again with other microbes." Sure enough,
earlier this year a mysterious, drug-resistant form of staph infection
emerged in the Los Angeles gay community. Other new infections and illnesses
are surely out there, waiting to wiggle into our disease-friendly group.
Which, as Rotello wrote, raises "the grim, almost unthinkable possibility
that for gay men, sexual freedom leads inexorably to disease."
You might expect
a "gay men's health movement" to be outraged about this state
of affairs. You might expect them to be shouting and stopping people
on the street and shaking them and saying, "Do you realize what's
going on? Do you realize what's going to happen to our community if
we keep this up?" You might expect that people like me--young,
gay, single, and living on Capitol Hill--have been told that there are
extremely high levels of STDs among gay men in Seattle, and you might
expect that we've heard this from the local gay health organizations
that claim to serve us. Since the problem is so serious, you might expect
these local gay health leaders to be responding seriously: making serious
statements, promoting serious prevention initiatives, going to serious
national conferences, and behaving seriously. Well, if you expect all
this you will be disappointed. Still, we are not
going to judge this public display of analingus, because the gay men's
health movement teaches us not to. The mantra of the gay men's health
movement goes like this: no judgment, no shame, no sex-negativity. Eric
Rofes, the gay writer, professor, and community health guru who presented
a keynote address at the summit, was very clear about what his ideal
gay men's health movement is, and what it is not. The ideal movement,
he said, is holistic, informative, trusting, celebratory, community-building,
and grassroots. And it is not focused on HIV, directive, fear-based,
moralistic, or professionalized. This is the type of movement that most
of the gay health leaders who attended the conference are trying to
build; when Rofes finished speaking, they all applauded loudly. Here's something
else this gay men's health movement is not: When it comes to preventing
STD and HIV infections, it's not working. The day after the
pool party, I am sitting in a brick-paved courtyard in front of the
Sheraton in Raleigh and baking in the hot sun with Fred Swanson, executive
director of Gay City Health Project. I am a little miffed because a
summit session I was looking forward to, "Chi Kung Wakeup Exercises
and Self Pleasuring at Sunrise," had been canceled because the
"erotic pleasure activist" who was supposed to lead it failed
to show up. But I am happy to finally get a chance to sit down with
Swanson, a short man with a shaved head and a soul patch. He was born
on Whidbey Island but raised all over the country and came back to Seattle
in 2001 to head Gay City--which has a $550,000 operating budget and
nine full- and part-time staff members--after working as a director
at Howard Brown Health Center, the largest provider of HIV/AIDS services
in the Midwest. I first ask Swanson
for his understanding of the current STD situation in Seattle. "I'd
look to the health department for the epidemiology," he replies,
deflecting the question. I had only recently found out about the statistics
myself, after I was asked to write about gay men and STDs. Swanson doesn't
seem much more informed than I was before I got the assignment--which
is odd, considering he's the head of an agency whose mission is to combat
the spread of STDs and HIV among gay men in Seattle. (Later, back in
Seattle, I asked him this question again. He said he was aware of the
rise in syphilis and gonorrhea, but was unclear on the exact situation
with chlamydia, and he didn't offer any stats or numbers for any of
these STDs. He also said he thought it was unclear whether HIV rates
were rising or falling.) As we eat lunch, I tell Swanson the facts--the
rising rates of syphilis, gonorrhea, and chlamydia, the near certainty
(made even more certain by this week's health department's announcement)
that HIV rates are also rising. I ask Swanson what Gay City is doing
about the problem. "I think that
we'll continue to cling to our model," he says, "which is
to provide resources and infrastructure and opportunity for men in the
community to become engaged and invested and define what is a healthy
gay male community." Gay City is going to keep doing what it has
always done: coffee talks, a gay summer camp, community forums, and
the annual Gay City University. "We need to make sure people have
good information--concrete information," he says. This is Swanson's
mantra: Give gay men the information they need, along with a safe space
in which to feel good about themselves, and they'll make healthy, informed
choices. In addition to its
website, Gay City mails out a newsletter every month to over 4,000 gay
men. I asked Swanson if he had ever mentioned the STD problem in that
newsletter. He told me he had, in a column he wrote for the March newsletter.
I asked him to send me a copy of the column. He did, and it contained
nothing about local STD rates. It was about mainstream media coverage
of bug chasers--gay men who want to get infected with HIV. About the
"buzz" surrounding bug chasers at the time, Swanson wrote:
"I wonder how much of this is more about avoiding tough issues
than really providing helpful information." I wondered the same
thing when I went to Gay City University on May 17. This was to be one
of Gay City's major events for the year. It was held at Meany Middle
School, and some 200 gay men attended, taking "classes" that
ranged from the cheese class to others with titles such as "Men's
Aromatherapy," "Bar Etiquette," and "Aging Gracefully."
In the morning assembly, the "school nurse" stood up and announced
that free STD screenings would be provided during the day. But he didn't
provide any information on the context in which the screenings were
being offered--the extremely high rates of syphilis, gonorrhea, and
chlamydia in the community. There were mentions, however, of hepatitis
A and B vaccinations (subliminal message: get these shots and you can
lick as much ass as you want) and HIV vaccine trials under way at the
University of Washington (subliminal message: don't worry, a cure is
coming). The "school nurse," Arnold Martin, a disease intervention
specialist with King County Public Health, told me that he didn't tell
the assembled gay "students" anything about local STD rates
because, "You might lose the audience's attention--they're here
to have fun." Predictably, only five or six of the 200 gay men
at Gay City University that day showed up for the free STD screenings.
"We didn't
view the day as specifically focused on that particular aspect of gay
men's health," Swanson said after the event. "That wasn't
the focus of the day.... If it had been a forum about STDs we would
have talked specifically about those issues," he said. THE CORE Core groups are
like incubation chambers for diseases. The trouble really starts when
members of core groups mix with people outside the core, and disease
begins to spread throughout an entire population. The gay community,
with its high rates of multipartnerism and anonymous sex, is particularly
susceptible to this phenomenon. If a gay man who doesn't have frequent
one-night stands has an unsafe one with a guy who happens to be in the
core group, and then goes on to have occasional unsafe one-night stands
with people outside the core, presto, the whole community's got a problem.
Fred Swanson of
Gay City doesn't like to see gay men as members of core groups or as
potential disease spreaders. "We're actually looking at the whole
being. When someone comes in, we don't look at them as simply a vector
of disease and a viral receptacle.... Epidemiological approaches and
public health approaches using the medical model are not necessarily
good for community health." "We don't seek
to provide answers," Swanson says of his agency's programs. "We
seek to provide an environment where people can ask questions. We're
not in the business of making broad statements about 'This is what it
is to be healthy.'" This kind of talk
incenses some gay public health people, including a gay CDC researcher
I talked to. When I told him about the uninformative, nonjudgmental
messages being sent to gay men in Seattle, the researcher directed my
attention to an article in USA Today about the "fight against fat."
Message: Being fat is bad, and bad for your health--so don't be fat.
This is what most good public health movements do: They tell you what
behaviors are bad for your health, and they tell you not to engage in
them. "Don't smoke, it's bad for you." "Don't ride without
a helmet, it's stupid." But for fear of alienating or marginalizing
or stigmatizing gay men, Swanson and others in the gay men's health
movement won't say, for example, "Hey you HIV-positive assholes
who are knowingly spreading HIV: STOP." The CDC researcher
wishes Swanson would. He wishes the message from gay community groups
would be less coddling and obtuse, and instead more direct. He suggests:
"Snap out of it. We're tired of holding your hand." "We're in agreement--what
has been happening isn't working," says gay men's health guru Eric
Rofes. We're sitting at a table in the Sheraton's bar where Rofes, a
big bear of a man, is explaining to me that the health problems gay
men are experiencing represent a failure of the world to fully adopt
his approach to gay men's health, rather than a failure of his approach.
"I do think
there will be more STDs [in gay men] absent core changes in our work
with gay men and gay men's health," he says. But the problem, he
says, is not so much gay men's behavior as it is "blaming gay men
and repressing gay men rather than creating techniques that would protect
gay men and support gay men at the same time.... The only place we see
this 'Please shame your community' is around gay men." These are of course
noble goals, but given the reality of the culture, they are also long-term
goals. Aside from the possibility that sodomy laws will be repealed
by the Supreme Court this summer, no one expects any of Rofes' other
ideas to be universally accepted any time soon. He knows that. He's
thinking long-term. "We need a 100-year approach to this,"
he says. One would hope that
a great deal will have changed for gay men in 100 years. But setting
that hope aside, one wonders: In the immediate future, while we're dealing
with extremely high levels of STDs among gay men in Seattle and gay
STD problems around the country that seem to be fueled by unsafe behavior
among gay men--particularly HIV-positive gay men--wouldn't a little
more shame and blame help? Shouldn't some gay men be ashamed? Virtually every
time a gay man gets an STD--or HIV--it is because another gay man gave
it to him. And the data clearly show that there are gay men in Seattle--many
of them HIV-positive--who don't care about spreading STDs or giving
other gay men HIV. In terms of the health of our community, it seems
to me that there very clearly is "bad" and "good."
It is bad to have guys out there knowingly spreading HIV and STDs. It
would be good for all of us if they stopped. One simple epidemiological
fact is that people who don't have HIV can't spread HIV, and people
who don't have STDs can't spread STDs. That doesn't mean people who
are STD- and HIV-free have no responsibility to protect themselves.
But it also doesn't absolve people who have STDs and HIV of their responsibility
to protect their sex partners, and it certainly doesn't change the epidemiological
facts. So why won't Gay City target the people who, epidemiologically
speaking, are causing the problem--say, the HIV-positive men who are
knowingly putting their sex partners at risk of HIV infection? FASCINATING QUESTIONS
"I think that
people that are being unsafe with each other, they're doing it for a
variety of reasons." This is how David
Richart, the education director for Lifelong AIDS Alliance, views the
problem. "Lots of the
time people are under the influence of alcohol," he says, "or
other drugs--party drugs. People are being unsafe because of child sexual
abuse...." It seemed like Richart
was about to say something directive, something like, "In an HIV
prevention program you have to be this," or, "We try to encourage
people to do that." But perhaps recalling that the fashionable
ideal in the gay men's health movement is to be nondirective, Richart
stopped himself and began his sentence again. But back to Richart.
Like Gay City, Lifelong AIDS Alliance says it is in the business of
giving people information. According to the organization's tax filings,
Lifelong spent $623,500 on "prevention education" in 2001,
and $300,000 on "community awareness." But is Lifelong really
giving gay men the information they need and making the community more
aware? "That's sort
of a huge indicator that the campaign was effective," he said.
Perhaps the campaign
was so ineffective precisely because its nonjudgmental message was uninformative,
to put it nicely. "We're Doing a Pretty Good Job of Infecting Ourselves"
tells you nothing about the current STD situation--most people probably
thought it was referring to AIDS, when in fact the campaign was spurred
by the rise in syphilis, gonorrhea, and chlamydia. The campaign did
have other messages that it put out in addition to "We're Doing
a Pretty Good Job of Infecting Ourselves." For example: "Your
Life, Your Responsibility." Again, what does this tell me about
STD rates in my community? Nothing. And then there were two campaign
messages Lifelong probably thought were really edgy: "Lesions Anyone?"
and "Syphilis Anyone?" To which most gay men probably replied,
"No thanks," and kept right on walking. Again, those messages
contain absolutely no usable information. No, he said, he
does not. And then he conceded that the debate over whether to describe
some actions as simply unacceptable is perhaps an important one. NOT SO EASY A not-so-subtle
point that Richart, Swanson, Rofes, and others made repeatedly in our
conversations is that solving the gay STD and HIV problem is not as
easy as simply talking about responsibility, boundaries, acceptable
behavior, and morality. When I asked Swanson whether it was frustrating
that over the past six years, despite all of Gay City's efforts at improving
self-esteem and the gay sense of community, STD rates among gay men
in Seattle had risen so dramatically, he replied, "What frustrates
me most is the way that people look for simplistic ways to describe
what's happening and look for simplistic and knee-jerk responses."
Imagine a young
gay man who is recently out and searching for a sense of his new community's
acceptable limits. Imagine an older gay man who has gotten himself into
a bad situation and wants to be told how to get out. Imagine gay men
of all ages looking for role models in leadership positions to tell
them how to navigate the pitfalls of gay life. Or, if you don't
like to imagine, go online and buy The Gift, a documentary
on bug chasers that was screened on May 24 at the Seattle International
Film Festival (www.thegiftdocumentary.com). This horrifying movie,
made by lesbian filmmaker Louise Hogarth, features Doug, a young gay
man who came from the Midwest to San Francisco looking for a strong,
accepting gay community and found that the people most willing to accept
him were the ones who wanted to give him HIV. So Doug became a bug chaser,
and guess what? Now he has AIDS. When he explains why he courted HIV
infection, he offers a damning indictment of the current gay men's health
leadership. He says no one ever told him getting HIV was bad. He says
that in the nonjudgmental universe created by gay men's health leaders,
the only message he ever heard was that being HIV-positive is--well,
positive. He says he wishes the gay community would stand up and say
what he now knows: That being positive is not positive; it is negative,
a horrible condition that you shouldn't want and you shouldn't spread.
Doug is an idiot
for not realizing this on his own, but his statements show how irresponsible
it is for gay leaders to think that their nondirective, nonjudgmental
approach to health promotion is sufficient. Kids like Doug, who have
fled often awful family situations and are looking to the leadership
of the gay community for guidance, can't get by on just cheerleading
proclamations of gay positivity. They need the gay groups to act in
loco parentis--as de facto parents. These guys need--and, as Doug proves,
want--someone telling them how to behave, someone telling them what's
good and bad, someone telling them who the assholes in the gay community
are, how to spot them, how to avoid them, and how not to become one
themselves. THE SEX CHECK STING
Billy is relieved, but then he begins to ask about the risks of some of his other behaviors. Billy: Is it okay if I sometimes fuck people without condoms, as long as I pull out before I come? Counselor: Is that okay? That's a question I'm not able to answer for you. I think it's a question only you can answer for yourself. Billy: Is it okay that I'm not telling guys I fool around with that I'm HIV-positive? Counselor: Determining what level of risk you're willing to take for yourself or for your partner is something you have to determine for yourself. It's not a question I can answer for you. It's really up to you. Billy: Is it illegal? Counselor: I think it might be illegal in five states. I don't know, that seems kind of wacky to me, but... [the counselor pauses to ask other people in the room about this]... as far as I understand, there are states where it is illegal to do stuff like that.... I may be wrong, you know. Billy: Is it illegal
here? Billy: Am I a bad person if I put other people at risk? Counselor: Oh, dude.
You're asking me a question I cannot answer.... The next gay man
who I had call the Sex Check line pretended to be cheating on his boyfriend.
This gay man--we will call him Charles--thinks he is HIV-negative but
recently had a three-way with two guys he didn't know. After the three-way,
it came out that the guys were HIV-positive, which shocked Charles.
He hadn't asked, assuming they would tell him if they were positive.
And the positive guys told Charles that they hadn't told him because
his failure to ask about their HIV status made them assume he was also
positive. Charles' boyfriend, who has told Charles their relationship
is over if either of them cheats on the other, is coming home in a few
days. A new counselor answers the Sex Check hotline. After offering Charles a number to call for HIV testing, the conversation moves in the direction of what to do about Charles' boyfriend, who is HIV-negative. The counselor asks if they use protection for sex. Charles says they don't because they trust each other to remain clean, and he says he can't start using condoms because his boyfriend would know something is up. Counselor: Maybe before he comes back, maybe something you could work on thinking about is finding someone to talk to. It sounds like you don't want him to know about the three-way you had. Charles: Oh, no. No way. Counselor: And it also sounds like since he's someone important to you, that caring about your health and his health is also a factor for you. [The counselor now offers Charles two other numbers, one for a crisis health care center and one for an AIDS support group.] Charles: I was hoping you would tell me what to do. I'm not gonna tell my boyfriend. Counselor: Yeah.
Unfortunately, the only person who can tell you what's important to
you and what works for you is yourself.... Charles: What should I do?
Counselor: I'm not sure what kind of answers you're looking for from
me. I think "should" is a really subjective word, and I'm
not gonna tell you what you "should" do for you and your relationship....
I definitely hear you say you would rather not confront the situation,
not get tested, and not share that info with your boyfriend. And it
is not a decision I can make for you. It's not something I can do. A CONSPIRACY OF
SILENCE Now listen to what
Dr. Hunter Handsfield, the director of STD control for King County,
says today, 21 years after Sonnabend: "I think a
legitimate argument can be made that there has not been the level of
leadership needed coming from within gay communities about gay men's
responsibility and what behaviors are acceptable with regard to AIDS
or HIV risk.... The bottom line is that without behavior change among
[gay men], nothing public health or the medical community has done or
can do will ever do much more than nibble around the edges of the problem."
When gay health
leaders talk about who is actually responsible for helping gay men deal
with the problem of STDs and HIV in their community, they talk about
a triad of care: local gay community health organizations, public health
departments, and individual doctors. (They basically give up on gay
men's families, though they shouldn't.) Because of a perceived legacy
of mistrust between the gay community and the institutions of public
health that dates back to the government's slowness to respond in the
early days of the AIDS epidemic, in Seattle, the local health department
likes to let gay community organizations shape and put out the bulk
of the prevention messages. Both sides see benefits to this arrangement.
It keeps the health department from seeming too "big brother"
and it gives the gay health leaders--who are theoretically most in touch
with their community's needs--control over prevention messages. It also
gives these organizations a lot of public money. In 2002, King County
Public Health gave more than $500,000 in public money to Lifelong AIDS
Alliance so the agency could build community and prevent HIV transmission.
And it gave almost $180,000 to Gay City for essentially the same purposes.
Yet Public Health
is itself now having to sound the alarm about STD problems in the gay
community, and having to say things like this: "I've thought that
it might be very helpful if leaders of the gay community would stand
up and say, 'This is not helpful, this is not acceptable.'" That's
Dr. Bob Wood speaking, the county HIV/AIDS program director, who himself
is gay and HIV-positive. "How can we expect the larger community
to respect us if we don't even respect ourselves?" Wood asks. "We
don't disclose our infection, we have anonymous partners.... We need
[the gay health leadership] to work with us. I'm not trying to point
fingers at them, but none of the gay leaders are speaking up on these
issues.... I don't know why they're not speaking up, because I know
that they're all fully aware of the seriousness of this problem."
If that's how people
working at King County Public Health feel about the efforts of Gay City
and Lifelong AIDS Alliance, why doesn't the county yank their public
funding? Or tell these gay community health organizations to get serious
or get off the public dole? If Public Health wants the gay community
groups to do better, maybe it should start holding them to higher standards.
The main argument
that you get from gay health leaders against coming down hard on problem
behaviors is that it could backfire. So what's the answer?
"I think the
large number of people--including myself--don't need guilt or shame
or direction. They need...." Here it comes again: "...information."
Gay men's health
leaders often insinuate that to be gay and promoting messages of sexual
restraint smacks of internalized homophobia. They say that to target
specific subgroups within the gay population smacks of discrimination.
They say, like Rofes, that presenting gay people with a strong message
will prompt us to behave like children, indulging in the very behaviors
mommy and daddy tell us to avoid. Now, which is really the anti-gay,
discriminatory, infantilizing stance: The position that says gay men
should be told exactly what is going on, no matter who it offends, and
held to the same basic moral standards for behavior as everyone else?
Or the position that says gay men are incapable of dealing with issues
of morality and the truth about the health of our community? Which of
these two positions really smacks of internalized homophobia? Coincidentally,
as this article went to press, the health department issued a press
release warning gay men about the rising HIV rates and the extremely
high levels of STDs in our community. The release urged gay men to take
responsibility for protecting themselves and others. It noted that "community
partners" were--finally--joining the health department in sounding
this alarm. And its instructions to gay men suddenly sounded urgent
and directive: Get tested for HIV and STDs frequently, use condoms,
always disclose your HIV and STD status to your sexual partners. Considering
what's going on, the new directives are nice--but way too late and still
too timid. PRINCIPLES, VALUES,
BELIEFS "We need to
kill this ageist bullshit crap that's going on in our community,"
said Brian Davis, one of Gay City's community organizers. Sounds like
a pretty strong directive to me. So the gay men's health movement wants
to denounce a younger gay man who makes older gay men feel bad. But
if that same young gay man wanted to infect older gay men with HIV,
no judgment? They were shouting:
"Shame! Shame! Shame! Shame! Shame!" DR. BOB WOOD: Director
of HIV/AIDS programs for King County DR. HUNTER HANDSFIELD:
Director of STD Control for King County |
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